Dumfries and Galloway ME and Fibromyalgia Network are busy developing some of these ideas into new projects that they think will help sufferers of these conditions, partner agencies and the Network as a whole, both now and in the longer term. As a potential partner organisation, they’re keen to know what you think.
These projects include a befriending service, which would match volunteers with sufferers who are most isolated, providing vital additional peer support; and an ‘expert patient’ mentor scheme, with trained volunteers who themselves suffer from ME, Chronic Fatigue Syndrome and Fibromyalgia supporting others who have just been diagnosed. DGMEFM Network are also keen to investigate whether a ‘clinical champion’ or network of champions could be identified within the health and social care partnership, as this is something which has been identified as a gap by their members.
Over the next couple of months, Sleeping Giants are supporting DGMEFM Network to consult with members of the Network and local organisations to find out their views.
What can YOU do to help people with ME, Chronic Fatigue Syndrome, Fibromyalgia and Long-Covid (where the symptoms overlap with ME, CFS and FM)?
- Please complete a short survey for local agencies here: https://www.surveymonkey.co.uk/r/DGMEFM-partner-survey. It will take around 10 minutes to complete and all answers are confidential.
- Consider joining our focus group for local agencies where we will be able to talk over your suggestions in a bit more detail as a group. This will take place on Thursday 28th October from 1.30-3pm. You can register here:
- Check out polls and questions on our Facebook page:
https://www.facebook.com/dgmefmnetwork - We’d also really appreciate it if you could share this around your networks, in your own newsletters or on your social media pages so we can hear from as many local agencies as possible. You can use the text below and the attachments included:
For organisations: “Are you from a local organisation that may support people with ME, Chronic Fatigue Syndrome, Fibromyalgia or Long-Covid? If so, Dumfries and Galloway ME and Fibromyalgia Network would love you to help them make plans for the future. Please complete their confidential survey here: https://www.surveymonkey.co.uk/r/DGMEFM-partner-survey It only takes 10 minutes. And consider joining their partner organisations’ focus group on Thursday 28th October: https://www.eventbrite.co.uk/e/dgmefm-network-a-focus-group-for-partner-organisations-tickets-185982186727 . For more details about the different consultation activities, please read over the attached information leaflet. If you would like more information about DGMEFM Network, you can contact Eppie Sprung, Development Officer on [email protected].
For people with ME, CFS, FM or Long-Covid: “Are you someone who suffers from ME, Chronic Fatigue Syndrome, Fibromyalgia or Long-Covid? If so, Dumfries and Galloway ME and Fibromyalgia Network would love you to help them make plans for the future. Please complete their confidential survey here: https://www.surveymonkey.co.uk/r/ME-CFS-FM-Long-Covid It only takes 10 minutes. And consider joining their focus group on 21st October at 2pm: https://www.eventbrite.co.uk/e/dgmefm-network-a-focus-group-for-sufferers-tickets-185930833127 . For more details about the different consultation activities, please read over the attached information leaflet. If you would like more information about DGMEFM Network, you can contact Eppie Sprung, Development Officer on [email protected].
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